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Long Covid Phenotypes - What Makes You Unique?
Long COVID does not look the same in everyone.
Your Long COVID symptoms may be different from what others experience due to a combination of your response to infection and your environment.
This tool helps to identify the pattern of your symptoms, a process called phenotype mapping. This is not a diagnosis; it is a way of understanding how your symptoms fit together.
If you think you may have a medical emergency, call your doctor, or go to the emergency department.
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What this means:
We want to know when your symptoms started and didn’t go away.
Examples:
- You felt unwell after COVID and never fully got back to normal
- You felt fine for a while after COVID, then symptoms slowly appeared
- Symptoms started after another illness or a vaccine
Tip:
If your symptoms come and go, think about when the problem first started, not just your most recent flare.
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What this means:
Some people feel bad all the time, while others have a mixture of good and bad days.
Examples:
Constant: You feel unwell most days, with little change
Relapsing (ups and downs): Some days are better, some are worse
Episodic flares: You feel mostly okay, then there are times when symptoms suddenly get worse
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What this means:
After doing a physical or mental activity, your symptoms get worse.
Examples:
- You go for a short walk, and the next day you feel wiped out
- Thinking hard or working on a computer makes you crash
- You feel okay while doing something, but feel worse hours later
To what degree, if any, do you experience PEM?
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What this means:
You sleep, but you don’t feel rested when you wake up.
Examples:
- You sleep 8–9 hours but wake up feeling tired
- You feel like you “never really sleep deeply”
- Naps don’t help much
Does this happen to you?
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What this means:
Your body feels switched on or jittery, even though you’re exhausted.
Examples:
- Your heart feels like it’s racing
- You feel anxious or buzzy for no clear reason
- You’re tired, but can’t relax
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What this means:
Standing up makes you feel dizzy, light-headed or unsteady.
Examples:
- Feeling faint when you stand up
- Needing to sit back down quickly
- Feeling shaky or weak after standing for a while
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What this means:
Your body has trouble keeping a normal temperature.
Examples:
- Feeling too hot when others are fine
- Getting cold easily
- Sweating a lot or having chills
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What this means:
Your throat or nose feels irritated even when you’re not sick.
Examples:
- Scratchy or sore throat most days
- Feeling like you have post-nasal drip
- Needing to clear your throat often
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What this means:
Your stomach feels uncomfortable often.
Examples:
- Your belly feels swollen or tight
- You get stomach aches that you didn’t have before
- Abdominal pain comes and goes
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Your toilet habits have changed since COVID.
Examples:
- More diarrhea or constipation
- Going to the toilet more often or less often
- Stools look different from before
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What this means:
Certain foods now make you feel unwell.
Examples:
- Feeling sick after eating certain foods
- Getting headaches, feeling flushed, or having upset stomach after meals
- Avoiding foods you used to tolerate
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What this means:
Eating makes you feel very tired.
Examples:
- Needing to lie down after meals
- Feeling heavy or foggy after eating
- Energy drops 1–3 hours after eating
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What this means:
Your thinking is less clear when your stomach is acting up.
Examples:
- Trouble concentrating when bloated
- Feeling slow or confused after meals
- Clearer thinking when your gut feels better
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What this means:
Eating may trigger your immune system so you may have noticed your symptoms improved if you skipped a meal or ate very lightly.
Examples:
- Feeling clearer before breakfast
- Feeling worse after eating
- Feeling best when fasting or eating very simply
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What this means:
Your head feels full or heavy, not like a normal headache.
Examples:
- Pressure in the back of your head
- A squeezing or full feeling
- Not sharp pain, just “pressure”
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What this means:
You feel sick to your stomach even when you haven’t eaten.
Examples:
- Feeling queasy for no clear reason
- Nausea without vomiting
- Feeling sick when moving or standing
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What this means:
Your sleep is broken by sudden awakenings.
Examples:
- Waking with your heart racing
- Feeling startled when you wake up
- Poor quality discontinuous sleep, even if you’re in bed long enough
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What this means:
It feels hard to get a satisfying breath, even if tests are normal.
Examples:
- Feeling like you can’t take a deep breath
- Needing to yawn or sigh often
- Breathing feels uncomfortable, not painful
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What this means:
You get out of breath more easily than you expect.
Examples:
- Climbing stairs makes you breathless
- Walking short distances is hard
- You tire faster than you used to
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What this means:
Your chest feels tight or uncomfortable when active.
Examples:
- Pressure in the chest when walking
- Tight feeling that eases with rest
- Not sharp pain, more squeezing
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What this means:
Your body struggles with physical activity.
Examples:
- Heavy legs
- Early exhaustion
- Needing long recovery after mild exercise
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What this means:
Your hands or feet get cold easily.
Examples:
- Fingers turning pale or cold
- Cold feet even indoors
- Trouble warming up
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What this means:
You’ve been told you may have blood-clot related problems since the start of the Covid pandemic.
Examples:
- Past clot diagnosis
- Being told you have microclots
- Ongoing circulation concerns
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What this means:
Your body now reacts to things that never bothered you before.
Examples:
- New rashes, itching or flushing
- Sneezing, hives or swelling
- Reactions to foods, smells or environments that used to be fine
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What this means:
Allergy medicines make you feel noticeably better.
Examples:
- Less brain fog after taking antihistamines
- Calmer body feeling
- Fewer reactions or post-exertional crashes
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What this means:
You get sick more often than you used to.
Examples:
- Catching colds easily
- Infections lasting longer
- Feeling run-down after minor illnesses
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What this means:
More detailed information about the phenotypes helps you interpret your results.
Either way, you’ll still see your scores on the next page with a link to basic information.
If you choose yes, you’ll receive additional helpful details by email.
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The image on the left shows an example of the scores you will receive next. It will be easier to interpret them if you have additional information that we can share with you by email.
If you would prefer to continue without the additional information, your scores will be shown now but cannot be saved or sent to you later.
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Providing a phone number is optional.
If helpful, we may be able to contact you directly to clarify results or next steps.
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Long Covid Phenotype
Based on your answers so far, here is a summary of your scores:
Epipharyngeal–Vagal (fatigue / POTS): ___
Involvement (Low 0–28, Moderate 29–46, High ≥47)
Gut–Immune (GI / food intolerance): ___
Involvement (Low 0–28, Moderate 29–45, High ≥46)
Brainstem / Choroid Plexus: ___
Involvement (Low 0–23, Moderate 24–37, High ≥38)
Vascular–Endothelial (exertional symptoms): ___
Involvement (Low 0–22, Moderate 23–36, High ≥37)
If you wish to have a clearer understanding of what these patterns mean, please click on the button below.